CAPRA has created a variety of ADRD datasets and analytic tools (such as programming script) that are available on the Data Resources page. Current datasets contain relevant cognitive and dementia-related outcomes for the National Health and Nutrition Examination Survey (NHANES), the National Hospital Ambulatory Care Survey (NHAMCS), the National Health Interview Survey (NHIS), Behavioral Risk Factor Surveillance System (BRFSS), and the Medical Expenditure Panel Survey (MEPS). The resources core is currently developing programming script for use on ResDAC (Medicare claims) data that can be used to identify ADRD.
Differences in Self-Reported Cognitive Limitations by Race and Ethnicity: National Health Interview Survey Analysis
Known differences exist in Alzheimer’s disease and related dementias (ADRD) prevalence across racial and ethnic groups. Previous studies have found that these groups tend to experience delayed diagnosis of ADRD that can lead to adverse health outcomes. Among the most common data sources used to study ADRD are Medicare Claims that rely on clinical diagnosis to identify ADRD. While these data may reflect receiving a diagnosis, they include misdiagnosed cases and potentially miss cases that go undiagnosed.