CAPRA has created a variety of ADRD datasets and analytic tools (such as programming script) that are available on the Data Resources page.
Current datasets contain relevant cognitive and dementia-related outcomes for the National Health and Nutrition Examination Survey (NHANES), the National Hospital Ambulatory Care Survey (NHAMCS), the National Health Interview Survey (NHIS), Behavioral Risk Factor Surveillance System (BRFSS), and the Medical Expenditure Panel Survey (MEPS). The resources core is currently developing programming script for use on ResDAC (Medicare claims) data that can be used to identify ADRD.
Health Care Use Patterns Among Older Adults with Dementia: National Data Snapshots Across Emergency Departments, Hospitals, and Skilled Nursing Facilities
Older adults with Alzheimer’s disease and related dementias (ADRD) have unique needs that may result in increased use of emergency departments (ED), hospitals, and skilled nursing facilities (SNF). Analyses to date have focused on encounter- or beneficiary-level outcomes. However, little is known regarding how key characteristics of individual facilities (i.e., hospitals) impact care seeking patterns among older adults with ADRD.
Additional work for this data brief was supported by the National Institute on Aging (NIA) of the National Institutes of Health under Award Number U54AG063546, which funds NIA Imbedded Pragmatic Alzheimer’s Disease and AD-Related Dementias Clinical Trials Collaboratory (NIA IMPACT Collaboratory). The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.
Characteristics of Emergency Department Visits Among Older Adults with Dementia
Older adults with Alzheimer’s disease and related dementias (ADRD) face unique health challenges that can lead to higher reliance on Emergency Department (ED) care. While previous studies have evaluated other types of healthcare use such as hospitalization among patients living with ADRD, very little is known about ED visits. Understanding the reasons that bring patient’s with ADRD into the ED is an important first step to prevent potentially inappropriate visits.
Differences in Self-Reported Cognitive Limitations by Race and Ethnicity: National Health Interview Survey Analysis
Known differences exist in Alzheimer’s disease and related dementias (ADRD) prevalence across racial and ethnic groups. Previous studies have found that these groups tend to experience delayed diagnosis of ADRD that can lead to adverse health outcomes. Among the most common data sources used to study ADRD are Medicare Claims that rely on clinical diagnosis to identify ADRD. While these data may reflect receiving a diagnosis, they include misdiagnosed cases and potentially miss cases that go undiagnosed.
