Purpose of the Data Resources Page:
- Create publicly available analytic tools (e.g., programming script) that can decrease time to functional accessibility of AD/ADRD healthcare administrative and survey data. There is no single “gold standard” approach to the identification of AD/ADRD (and relevant outcomes) using administrative and/or cognitive function measures. The choice depends on tradeoffs in performance dependent on a variety of factors. Therefore, we will develop and disseminate code (and “finder files”) designed to identify AD/ADRD cohorts and relevant outcomes using a variety of current, validated algorithms and post them here.
- We will also create aggregate publicly available AD/ADRD datasets (both national and regional) and provide an efficient mechanism for CAPRA pilot awardees use administrative data. The “virtual seat” in the Research Data Assistance Center’s (ResDAC’s) virtual research data center (VRDC) used by the core’s analyst will be utilized to construct national aggregated datasets (at U.S. Census and healthcare geographic units) that we will make freely available for AD/ADRD research. This trained analyst and data access will be available to pilot awardees who obtain appropriate data reuse permissions to use administrative data from ResDAC or the Michigan Long-term Services & Supports Data Archive.